Advice from Caregivers

As part of NR SEPAC's 2026 caregiver survey, respondents were asked what they would tell any family just starting out with special education.  A few common notes were:

• Educate yourself early – know your child’s rights; knowledge is power.

• Get support immediately – build a village of experienced parents, medical professionals, advocates, and (if needed) an attorney.

• Hire an advocate – the system is complex, and trained advocates help you know what to ask for and how to push effectively.

• Be an active partner – you are a critical member of your child’s IEP team and know your child best.

• Ask questions & demand clarity – never feel intimidated; request explanations for anything you don’t understand.

• Document EVERYTHING – keep written records of all meetings, emails, concerns, and decisions.

• Trust your instincts – if something feels off, seek outside evaluations or support.

• Advocate firmly but professionally – be patient, persistent, and respectful; push hard while maintaining collaboration.

• Remember: you are not alone – advocacy is essential, especially for misunderstood or complex medical and learning needs.